We met with the doctor before the treatment, as usual. My iron counts continue to be low but haven't dropped too much since last time. I get winded and dizzy really easily (like when walking up the stairs too fast) and that is likely because of the low iron. We also talked about my struggles with the exhaustion. I started to cry a little and she came over and gave me a big hug. (Love her!) She reminded me that this chemo regimen is one of the tougher ones. She and Dr. Winer had discussed that we don't "have" to do the Taxol (drug for the final 4 rounds) if I am not tolerating the first regimen but since Taxol is supposed to be easier, I will definitely be moving forward with it. We are not short cutting this treatment in any way as I plan for this to be my one and only recurrence. I'll go back on Friday for fluids to hopefully help with some of the side effects.
As we know, the fatigue over the first weekend of this past cycle was really hard for me. I have been thinking about how to potentially make it better and came up with some ideas (and need your help):
- The holidays (and related prep) being over should be extremely helpful as I won't be laying on the couch thinking of all the things I really need to be getting done. (The Christmas decorations will get put away at some point... before summer.)
- Even when I am at my most tired, I need to leave the house and see other adults. So this weekend, I need to make an effort to get out, even just to go across/down the street. (Neighbors, consider yourself warned. I might just show up! ;)
- If you think of me anytime between Friday and Sunday, send me a text or email... comment on the blog... remind me that I can do this... send an inspirational quote.... etc. That will definitely help!
I'm so proud of you! You are doing great. I kind of re-live my A/C cycle memories by reading yours. The chemo brain, the fatique, the weird taste of metal, etc. It goes away eventually. But the best part is your positive attitude overall. This is a hard thing to experience and you're doing it with grace and humor and you are accepting help from others which is crucial too. God bless you and your family in the new year. I know this so hard but you're getting through it and this time in 2015 you will have it behind you and you will be enjoying all good happy things in good health! Hugs galore coming your way, Amanda! xoxoxox
ReplyDeletethank you for the Christmas card, sweetheart. It took two weeks to get here, sheesh! You have such a beautiful family. Your kids are going to be the most amazing people, growing up with two great role models like you and Craig. They are already great people -- it shows. And we will always have a soft spot in our heart for gorgeous Miss Emily, V's first best friend!
ReplyDeleteTake care of yourself. Thinking of you and sending lots of love.
Happy New Year, Amanda! You are doing an incredible job of getting through all of this with a sense of humor intact. I have a secret bet with myself that your decorations won't be up much later than Groundhog Day...
ReplyDeleteJust keep thinking about Hawaii, and treat yourself to your favorite funny movies!
Hugs and best wishes,
Kara
Nearly halfway woohoo!! Keep going - you can totally do this - you're doing amazing.
ReplyDeleteContinuing to send you warm hugs, positive thoughts, and hopeful prayers, Amanda. I know you can do it. xox Joy
ReplyDeleteCan you do it? You have already done it! the first 4 are done and dusted - and you'll never have to do those 4 again. That's HUGE! And guess what? It's a new year and new years ALWAYS bring hope, promise and resolve! We are all behind you, Amanda. Use our strength whenever you feel yours waning. XOXOXO
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Like Nancy above, I can totally relate to those awful side effects. They do go away eventually so just hang in there! By this time you are now done with the A/C and halfway done with chemo overall so you can do this. It sounds like your local support is fabulous so I know they will help pull you through. A cancer support group is great, too, since it's helpful to compare notes with people who are going through the same process at the same time. Set your mind on Hawaii, and you'll be there in no time. :) Meanwhile, sending you strength and big hugs from Helsinki!
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